Wednesday, September 12, 2012

First day...John likes the CNN because checking his vitals involves "no ows".

John with nasal feeding tube...he LOVES this small pink tricycle with his balloons attached.  What a trooper!
John was able to tolerate the placement of the nasal feeding tube last night.  He didn't like it one bit and fought it hard and cried his eyes out.  But he settled down by late evening and had an overall good day today.

So far the nasal tube is still in its correct place.  So no contest winners yet!

Whenever the medical personnel come in to do blood pressure checks, he says, "No ow" to indicate it won't hurt.  When they bring him to the procedure room to do blood work, he yells, "NO OW!!!" so he has no needle pricks...he hates needles.

Our GI doc came in today.  She said the good news is that John has already started to gain weight under the nasal feeding tube.  The bad news is that she said John is getting only half his needed calories from eating food, so the stomach tube will definitely be needed.  She also said with John's upcoming Human Growth Hormone Therapy, the stomach tube nutrients will be even more needed in order to provide him all the nutrients he needs for growth.

The GI doc said the stomach tube surgery will be Friday morning and if everything goes as planned, he will be released from the hospital on Sunday.  Praise God!

She said John may even be up to returning to school by Monday, but we are going to see how he is doing before making that commitment.  He may appreciate one day of additional recovery given his long educational career ahead of him.

(Ron post)

1 comment:

  1. SO glad John likes riding the bicycle and is putting up with the tubes! Praying for you -
    Pam

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