Saturday, August 6, 2011

Update on John's progress


Dear friends and family,

We have had several people inquire as to how John is doing so we decided to send this update.  THANK YOU for your prayers!!!

Medically, John is doing fine.  He has escaped infection and doesn’t seem to be in physical pain.  He is very active during the day and smiles plenty, especially when he plays with his Grandma M (Menefee).   One of the best gifts we received as John was dismissed from the hospital is that he only had to wear his arm constrains when he took a nap or went to sleep at night. 

The first day or so at home, John was very angry about not being able to eat solid food.  He screamed/cried for an hour the first day.  We think that he thought that once he got back home, he could get what he wanted to eat.

Then at night, he resists putting on his arm constrains when going to sleep, he wakes up in the middle of the night very angry that they are still on and asks for “food” to comfort him.  As you might have guessed, John is asking for REAL food and when we give him the liquid food, his anger increases; needless to say, none of us got much sleep during these nights.   We have tried a number of things to comfort him as he screams/cries…taking a bath, playing music, even watching a video.  However, the cries only subside as long as the arm constraints remain off.   The last two nights this pattern has waned a bit.  Poor thing, being so young he does not understand when we count down the days left for his recovery, which only increases his frustration.   However, the last two nights we have seen improvement.

We have seen/felt your prayers as we have cared for John this last week and ½.   Looking at photos from a week before the surgery, John’s fingers were almost ALWAYS in his mouth.  It is amazing to us that he has submitted to the “no fingers in your mouth” rule during the day when his arm constraints are off.   In addition, John has not regressed in his behavior like last time.  Instead, he seems to want to be held by us more often and more tightly.  So precious…

I hold back the tears every time I think of those of you who are praying for John.   Someday he will understand and be able to receive the outpouring of God’s love through you.   Know our hearts are full of gratitude.

Sincerely,
Laurie and Ron

John's request for "one more time", which really means "again" ...this time in relation to whipped cream (Before surgery)   

John meeting our dear friend, Joe,  who works with Campus Crusade in Paris.  Joe was at the CCC staff conference in CO and was able to meet John for the first time. 
Surgery day, the arm band placed on his wrist and more to come....
Another miserable moment with arm constraints
Happy time with Grandma Menefee...